The team was formed in January 2012 after a number of TTTS parents got together online sharing the desire to do something to help other families who had lost children to Twin to Twin Transfusion Syndrome. The TTTS Support Team was created and the foundation of the Team, the grief care package idea, was born.
The group started sending out packages in 2012 and has sent out almost 1000 packages world wide since then. In March 2016 we received our 501(c)3 status, becoming a recognized federal non-profit in the United States.
Since that time we have grown our connections with other charities and parent groups to extend our support. We continue to build our direct support of more families and expand awareness of all things TTTS using social media.
Interesting fact on the Team - the two officers Christina Sporer and Piperlyne Tomczyk have never met in person. The entire Team was built on the internet, allowing us to connect, and grow this charity to the international level it is. We look forward to growing even more.
Who We Are
Founder/President and Parent Outreach - Christina Sporer
Co-founder/Vice President and Marketing Manager - Piperlyne Tomczyk
The Team - An amazing group of TTTS mothers spread out on three continents volunteering their time and love to all our families.
Support - The foundation of our group is supporting the families who have received a diagnosis of TTTS, TAPS, and TRAP. Supporting all families in all situations is so important to us we put it in the center of our charity name! We began our group focusing on grief support and have been growing that base of support to include all families during and after their pregnancy.
Community/Connection - Understanding that it is through community and connection that we all grow stronger and more powerful with the goal of effecting change in awareness, knowledge, treatment and healing for all families in our community; no one group left behind. With this goal in mind we have partnered with many other TTTS parent groups, charities and medical professionals. For more information please check out our Partnership page. It is our community that makes us who we are.
Awareness - We know that the best way for our babies and families to get support outside of those who are directly impacted by TTTS is by building awareness. We do this by running our own awareness programs along with supporting our families who are doing their own work in building awareness.