Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Support Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2020 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer for the Team please email us at Admin@TTTSSupportTeam.org or message us on Facebook.
Christina and Piperlyne
Current Projects and Fundraisers
Father's Day 2020
We want to take a moment to acknowledge and honor all of the dads in our community. There is nothing like the strength, security, and warmth of a father's love
Last year we asked our TTTS Dads to share with us their thoughts, experiences, and wisdoms on being a TTTS Dad. We created the video below showing the powerful and honest words they shared.
We are so grateful for the work and love our fathers bring to their significant others and the children they love.
Thank you TTTS Dads. Happy Father's Day.
Become a volunteer for the Team!
If you are interested in becoming a volunteer for the Team we would love to hear from you! We are a group of committed TTTS parents who wish to make a difference for the families facing this syndrome.
Maybe you would be interested in supporting our grief care package program? Do you live in the UK or outside of the US? Or maybe you have some amazing administrative or writing skills you want to share. If any of these, or more, are true, we want to hear from you!
If you have any questions or would like to volunteer please email us at Admin@TTTSSupportTeam.org.