Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Suppport Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2019 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer member of the Team please email us at TTTSSupportTeam@aol.com or message us on Facebook.
Christina and Piperlyne
PLEASE CLICK HERE to request a grief package.
Current Projects and Fundraisers
What I Wish I Knew
When looking back at your TTTS pregnancy, what is it that you wish you would've known? Will you share it with the community?
This December we are again running our "What I Wish I Knew" awareness raising campaign. We want to tell your story because if you experienced it, it is sure that others have also. Through our shared experiences we create connection. Click HERE to see some of the stories from last year.
Please click HERE to be taken to the google form we created to send us your experience and we will do the rest.
Through our stories we can effect change. Help us tell your story.
Giving Tuesday, December 3, 2019
Please join us on #GivingTuesday, help support the TTTS Support Team support you and all other families facing a TTTS diagnosis.
For every donation of $25 or more we will include your personalized message of support in a future grief package or dedicate a care package in memory of your TTTS angels.
You can donate through this Facebook Fundraiser
Or via the PayPal button below.
Thank you so much for your donation.