Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Support Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2020 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer for the Team please email us at Admin@TTTSSupportTeam.org or message us on Facebook.
Christina and Piperlyne
Current Projects and Fundraisers
Join our newest support Group for families with babies in the NICU!
The TTTS Support Team is so excited to announce that we are expanding the support we offer our families! We have started a Facebook group for families who have faced, or are facing, NICU time.
We believe in offering inclusive, safe, supportive, encouraging, family centered, and facts/research based support and you will see the same in our NICU group. So if you carried multiples that shared a placenta and had a NICU stay or are currently in the NICU, we invite you to join the Facebook group, Identical Multiples NICU Support Group.
Click here to join.
Would like to participate in this year's Wave of Light Video for Pregnancy and Infant Loss Awareness month?
We were so honored by acknowledging your babies in last year's October 15th video we would like to do it again.
If you would like to include the names of your babies who died from identical multiples syndromes and their complications please click here to add their names.
We are accepting names until October 5, 2020. If you have any questions or concerns please email us at email@example.com.