Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Suppport Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2019 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer member of the Team please email us at TTTSSupportTeam@aol.com or message us on Facebook.
Christina and Piperlyne
PLEASE CLICK HERE to request a grief package.
Current Projects and Fundraisers
October is Pregnancy and Infant Awareness Month
Please join us on October 15, 2019 for the Wave of Light. You can participate by lighting a candle from 7:00 to 8:00 pm local time in remembrance of all the babies gone to soon.
This year we decided to create a Wave of Light video to specifically honor and remember those babies who had died from TTTS, TAPS, SIUGR and their complications. Thank you to all the families who participated.
True Words Campaign
What is your True Word?
Hope - Fearless - Survivor
We have a number of originally created products available for purchase through Threadless. All designs are exclusive and made with love by a team of designers who have been working over the past few months to bring them to you. These are words of healing and hope, words to wear with pride, or to use as conversation starters. Words you can gift to friends and family.
Click here - to be taken to our boutique where you can shop all the True Words designs. All proceeds benefit the TTTS Support Team.