Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Support Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2020 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer for the Team please email us at Admin@TTTSSupportTeam.org or message us on Facebook.
Christina and Piperlyne
Current Projects and Fundraisers
Become a volunteer for the Team!
If you are interested in becoming a volunteer for the Team we would love to hear from you! We are a group of committed TTTS parents who wish to make a difference for the families facing this syndrome.
Maybe you would be interested in supporting our grief care package program? Do you live in the UK or outside of the US? Or maybe you have some amazing administrative or writing skills you want to share. If any of these, or more, are true, we want to hear from you!
If you have any questions or would like to volunteer please email us at Admin@TTTSSupportTeam.org.
The Audrey & McKenna Foundation
In November we had the opportunity to talk with Audrey and McKenna's parents as they faced the unthinkable, the death of their twin girls.
Within days of the loss of their twins, they began The Audrey and McKenna Foundation to help other families facing the same devastating loss.
We are so very honored to share the work they are doing and support their mission of providing a 100% free, handmade cremation box from someone who has been where you are.
To request a cremation box for your child(ren) please contact them directly here.
Click here to follow them on Facebook.
If you would like to request a grief package from the Support Team, please click here.