Welcome to the TTTS Support Team
Our focus is helping parents who have received a diagnosis of Twin to Twin Transfusion Syndrome by offering grief support, raising awareness of TTTS, and helping families understand how to advocate for the best possible care.
When we started the TTTS Suppport Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families and a December social media blitz of TTTS experiences to promote connection and sharing within our community.
Look to 2019 to include another very exciting awareness project and more specialized support for another specific group of the TTTS community.
If you are newly diagnosed and have questions or are going through a long NICU stay and would like support, we can help too, email us at TTTSSupportTeam@aol.com.
If you are interested in becoming a volunteer member of the Team please email us at TTTSSupportTeam@aol.com or message us on Facebook.
Christina and Piperlyne
PLEASE CLICK HERE to request a grief package.
Current Projects and Fundraisers
I Am a TTTS Dad
We LOVE our TTTS Dads!
So many of the stories about a family going through TTTS come from the mother's point of view. Our moms are courageous and brave women. We also want to acknowledge our brave and courageous dads. We are looking for TTTS Dads who would like to take part in our "I Am a TTTS Dad" campaign and share their experiences in going through Twin to Twin Transfusion Syndrome from their point of view.
So, dads, if you want to share your story in honor or memory of your children and to help other dads who will be having their own TTTS fight in the future, please email us at TTTSSupportTeam@aol.com and title the email "TTTS Dad" so we can talk more about our upcoming campaign.
May TTTS Awareness Campaign
A Big Thank you to everyone who participated in our May campaigns!
Faith - Hope - Awareness
Peace - Love - Awareness
The t-shirts will be shipping out May 27-June 3. Please let us know if you have any questions or concerns.
Thank you again!
True Words Campaign
What is your True Word?
Hope - Fearless - Survivor
We have a number of originally created products available for purchase through Threadless. All designs are exclusive and made with love by a team of designers who have been working over the past few months to bring them to you. These are words of healing and hope, words to wear with pride, or to use as conversation starters. Words you can gift to friends and family.
Click here - to be taken to our boutique where you can shop all the True Words designs. All proceeds benefit the TTTS Support Team.