Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Support Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2020 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer member of the Team please email us at TTTSSupportTeam@aol.com or message us on Facebook.
Christina and Piperlyne
Current Projects and Fundraisers
What I Wish I Knew
Thank you to everyone who participated in our campaign "What I Wish I Knew 2019" for TTTS Awareness month. If you would like to see the photo album on our Facebook page, please click here.
We believe that through our stories we can build community, raise awareness and improve the level of care for all future TTTS families.
Giving Tuesday, December 3, 2019
Thank you to everyone who donated to the Team for Giving Tuesday and throughout 2019! From all of us on the Team and all the families we support, thank you for helping us to continue our work.
If you would still like to donate you can donate through PayPal using the donate button below.