Welcome to the TTTS Support Team
We support families who have received a diagnosis of Twin to Twin Transfusion Syndrome by creating connection, community, and awareness.
When we started the TTTS Support Team we started as a group of parents who wanted to offer support to the grieving parents of our community. Grief support is our foundation. We began by creating and offering free grief care packages. This program continues to be one of the core programs of the Team. We send packages to families world wide. There is no time limit to when a family can request a grief package, because there is no time limit to the grief families experience.
Two other foundational programs created by the Team include; Mother's Day and December Holiday card mailings to the mothers and families who have received our packages in the past.
Our newer programs include an awareness raising blog of TTTS stories as told by the families, a partnership with some of the top maternal fetal medicine surgeons in the United States, and new partnerships with other TTTS parent groups that focus on up to date medical information and parent advocate resources.
Look to 2020 to include another very exciting awareness project on our social media and more specialized support for another specific group of the TTTS community.
If you are interested in becoming a volunteer for the Team please email us at Admin@TTTSSupportTeam.org or message us on Facebook.
Christina and Piperlyne
Current Projects and Fundraisers
Sunshine After the Storm Retreat for Grieving Mothers
One full scholarship available!!
We here at the TTTS Support Team are always thrilled and honored to use our platform to support our community of parents who support each other.
Because of that, we are pleased to support Sunshine After the Storm and their second annual Healing Retreat for Grieving Mothers, June 11-13, 2020. Due to continuing health concerns worldwide this 3 day retreat will be offered virtually. So you can be virtually anywhere in the world and still participate in the retreat.
We feel this retreat is so important and so needed in our community we have decided to offer one full scholarship to our TTTS/TAPS/TRAP families!
If you are a grieving mother and would like more information on the retreat please visit - http://ow.ly/78Ef50zLWue
If you a member of the TTTS grief community and would like to apply for a scholarship to attend the retreat, we are accepting scholarship requests from the community through May 31, 2020. Please apply here - http://ow.ly/FWBJ50zLWub
The recipients of the scholarships will be announced on our social media and be contacted via email on June 1, 2020.
Become a volunteer for the Team!
If you are interested in becoming a volunteer for the Team we would love to hear from you! We are a group of committed TTTS parents who wish to make a difference for the families facing this syndrome.
Maybe you would be interested in supporting our grief care package program? Do you live in the UK or outside of the US? Or maybe you have some amazing administrative or writing skills you want to share. If any of these, or more, are true, we want to hear from you!
If you have any questions or would like to volunteer please email us at Admin@TTTSSupportTeam.org.