News: New Facebook Group - The Butterfly Garden
The Butterfly Garden is an online support group that provides a safe place for bereaved families to talk about their loss freely and openly. The Butterfly Garden supports families during all stages of loss, both during and after pregnancy.
Join the group here: The Butterfly Garden on Facebook
Join the group here: The Butterfly Garden on Facebook
Where To Find Help And SupportSupport Networks
If you've been diagnosed with TTTS, then it can be difficult to find communities and organisations who can help you. These communities believe in offering inclusive, safe, supportive, encouraging, family centered, and facts/research based support. Facebook Communities TTTS Hope and Connections Twin Anemia Polycythemia Sequence (TAPS) Support Mono-Di Twins/Multiples Support TTTS Grief Support TTTS/TAPS/SIUGR- Survivors with Guardian Angels Parents of Twinless Twins Twins Trust Bereavement Support Group (private group) Organizations Fetal Health Foundation TAPS Support Twins Trust Bereavement Support |
About the TTTS Support Team
We support families who have received a diagnosis of Twin To Twin Transfusion Syndrome. Creating an inclusive community filled with support, understanding, compassion, reinforced with up to date medical information on TTTS. The TTTS Support Team started as a group of parents who wanted to offer support to the grieving parents of our community. Over the past 10 years we have grown and evolved and are excited to continue to broaden our support to all families who have experienced TTTS. We are inclusive to all families, all belief systems, and all outcomes. While we have evolved, one thing stays the same. We are committed to improving outcomes for multiples, providing evidence based information, and working in harmony with doctors and research. Stay tuned for more exciting updates in 2022, and about our new collaboration with TAPS Support |
