The team was formed in 2011 with a number of TTTS parents who got together online sharing the desire to do something to help other families who had lost children to Twin to Twin Transfusion Syndrome. The TTTS Support Team was created and the foundation of the Team, the grief care package idea, was born.
The group started sending out packages in 2012 and has sent out almost 1000 packages world wide since then. In March 2016 we received our 501(c)3 status, becoming a recognized federal non-profit in the United States.
Sadly, due to dwindling volunteer numbers, coronavirus, and personal reasons, the non-profit arm of the team closed officially in 2021.
However, we have grown our connections and built our community with other charities and parent groups to extend our support. We wanted to continue to expand awareness of all things TTTS using our social media platforms, and website, and have partnered with TAPS Support who generously volunteered to host our website and help us raise awareness.
As we continue to grow and transition as an organization, who knows what the future holds. For now, we will continue to go on as we began - raising awareness of TTTS, helping families understand their diagnosis, and provide factual, evidence based information for families who need it.
And we will continue to work with researchers, doctors, and other professionals, as well as charities who are wanting help us on our mission!
If you'd like more information on the TTTS Support Team, on TAPS Support, or would like to volunteer with us - please email firstname.lastname@example.org
What we stand for.
Support - The foundation of our group is supporting the families who have received a diagnosis of TTTS, TAPS, TRAP and SIUGR. Supporting all families in all situations is so important to us we put it in the center of our charity name! We began our group focusing on grief support and have been growing that base of support to include all families during and after their pregnancy.
Community/Connection - Understanding that it is through community and connection that we grow stronger, we support all families in our community, no group left behind. Going through TTTS can be isolating and overwhelming, using our connections we help to connect you with other TTTS parent groups, charities and medical professionals. For more information please check out our Partnership page or send us an email. When our community is empowered, we are all empowered.
Awareness - We know that the best way for our babies and families to get support in the world is by building awareness. We do this by running our own awareness programs along with supporting the families in our community who are doing their own work in building awareness.
Who Are TAPS Support?
TAPS Support are a registered non-profit organization based in the Netherlands. They raise awareness of TAPS, and also raise funds for research into this rare complication of monochorionic twins (and related disease, such as TTTS and SFGR).
Our foundation is dedicated to making a positive impact on the world of monochorionic twins, through education, connections, and research for doctors, families, and policymakers. We challenge outdated guidelines, empower parents to ask questions and advocate for the best care before, during and after a monochorionic twin pregnancy, and work towards creating better outcomes for twins worldwide.
Read more about their mission and vision here.
Make a donation to keep our website going here below.
All funds go to Stichting TAPS Support, a registered non-profit organization.